Archive for category Elizabeth

Update 9/13/2011, Elizabeth – Just Talkin

Posted by on Tuesday, 13 September, 2011

Crinkles

Hi all,

Elizabeth is doing well. Now tipping the scales at 8 pounds and 3 ounces. She had another visit at the heart doctors yesterday (9/12/2011) and everything is looking good and the doctor is very happy with her progress. Heart surgery is still looking to be sometime between Nov – Jan, but it is too early now to set a date.

She is still needing oxygen, but at the very lowest flow setting and only when she is sleeping. She set another record a couple days ago…she had 5 1/2 ounces in one feeding, she normally has between 3 and 4. You might be able to tell in the picture that she is starting to show those extra ounces.

She is getting more and more active. I have included a short youtube video of her talking a bit.

Hope you enjoy.

-Lockley

 

Update 8/8/2011, Elizabeth Gentes

Posted by on Monday, 8 August, 2011

Family and Friends,


I wanted to send along an update of how things are going with Elizabeth. Thank you so much for your prayers and support over these last 2 weeks—we have certainly felt your love and caring.

Elizabeth is continuing to do well. She is eating and sleeping and she is steadily gaining weight. She is now up to 6 lbs 15.8 oz as of today (8/8/2011)—and they measured her at 19″ long.

Today was our first visit to the Phoenix Children’s Hospital where we visited with our Pediatric Cardiologist (Kids Heart Doctor), Dr. Puntel. This doctor had made a trip to the hospital (a couple weeks ago) where Elizabeth was born to meet us and Elizabeth—Today was our first visit with him on his turf.

During our visit today, the doc said we could remove some of the restrictions of the oxygen for Elizabeth. She will only need the oxygen now while she is sleeping, not during her awake time—which was great to hear. He said it may be another 3-4 weeks before she can come off it completely.

He also recommend we give her some more calories in her diet, so she can bulk up a little quicker—so we will work out the details of that when we visit our regular Pediatrician–this week likely.

They did another ultra-sound of the heart (echo cardiogram)—and the results were exactly what the doctor was expecting, so there is no change in her schedule for having surgery in 4-6 months. The doc did mention he would rather her have the surgery closer to the 6 months than the 4 if possible—meaning the bigger and stronger she is the better things will go with recovery.

At home, her sisters are starting to help more, with the girls feed her some and playing with her during wake time. Grandma Terry is here helping and she has been a tremendous help with everything. Auntie Kelly also came in for a few days and helped out by using her superior shopping skills to get all our back to school shopping done—and of course the girls all loved to go out and shop with their aunt.
We are getting adjusted to these new changes and challenges. It has been a few years since we had a newborn, but it is coming back slowly. Eat, sleep, change diaper, repeat. She is eating about every 4 hours and has been sleeping pretty good…we normally have to wake her for meal times, but she is slurping down about 4 ounces per meal—which is great for a new born.

I am putting up more pictures on facebook, google+ and flickr. Here are the links (if you don’t have facebook account or a google account, then you can look at the pics on flickr):


Facebook Pictures

Google+ Pictures


Flickr Pictures



The same areas of prayer would still be appreciated:
  • continue to eat well, gain weight and strength
  • breathing to stabilize and not have too shallow of breathing when she is sleeping
  • her heart is healed
  • wisdom to raise her in a home where she will thrive developmentally and physically
Love and Hugs from Lockley, Heidie, Rebecca, Rose, Kaitlyn and Elizabeth

Elizabeth Abigail Gentes

Posted by on Thursday, 28 July, 2011

Friends and Family,

I wanted to let everyone know about the birth of our 4th daughter, Elizabeth Abigail Gentes. Born July 20, 2011 at 5lbs 14oz and 17″.  She was born with some serious health issues and is still in the hospital today (July 27 2011).

Heidie is doing well, after a super fast delivery, as our little bundle did come in a hurry. Heidie was released from the hospital after 2 days, and has recovered wonderfully.

Not long after the baby was born the doctors informed us that she likely has downs syndrome. That initial shocking news was confirmed through the chromosome test that were done. As part of the routine testing that gets done for kids with downs, doctors check the heart. Many kids with downs also have heart problems and unfortunately, Elizabeth has a serious heart problem where her heart has not fully developed. The main wall that separates the left and right side of the heart is not developed properly and the valves linking the top chambers to the bottom chambers are also not developed properly.

We met with a heart specialist doctor yesterday from Phoenix Children’s Hospital—that visit provided us with some general guidelines of what to expect with Elizabeth’s condition. This defect in her heart will require surgery to fix. This surgery would likely be done sometime around 4-6 months of age. We want Elizabeth to grow steadily and become stronger so she will be able to handle the surgery well.

Elizabeth with is now a week old and we know this about her now: She is a good eater. She is, of course, the cutest little girl who loves to look around and smile. She did start off having an IV as well as a feeding tube (down her throat). Well, she quickly was taken off of that after tests showed her digestive system is working fine. Once we were able to feed her milk, she showed us that she likes to eat.  As each of the first days went by she would eat more and more each time.

One thing that she has had a hard time with is her oxygen level. It sometimes dips a little below levels that doctors would like. As such she has been on and off tubes for giving her extra oxygen and air flow.

Elizabeth has been in the intensive care unit for her first week. However, tonight she was released from the hospital and at 10:55pm she arrived home. She will be on oxygen for a couple weeks (maybe up to a month) while her breathing stabilizes and she is able to have the proper oxygen level and air flow.

We would really appreciate your prayers in the following areas:

  • continue to eat well, gain weight and strength
  • breathing to stabilize and not have too shallow of breathing when she is sleeping
  • her heart is healed
  • wisdom to raise her in a home where she will thrive developmentally and physically

 

If you are on Facebook, you likely have seen our pictures of Elizabeth, of course she is cute as a button.  I will be posting more pictures there. Here is a link to the Facebook album (you need a Facebook account to see the pictures):

http://www.facebook.com/media/set/?set=a.10150247783828580.331058.724988579

Thank you for all your prayers and support of Elizabeth and our family.

Feel free to email me—however, please don’t expect an immediate reply to your questions. I will try to continue to send timely updates about Elizabeth, but I would most certainly ask for your patience as our family begins this most unique and wonderful new journey.

Blessings,

Lockley & Heidie Gentes

 

UPDATE (7/29/2011): for those who don’t have facebook, you can look at the pictures here:

http://www.flickr.com/photos/lockley_gentes/sets/72157627184349321/

New Addition in AZ – Updated

Posted by on Friday, 6 May, 2011

The baby is growing nicely.  Heidie is now 7 months along. Oh, the baby is a girl! Check out the feet, kinda cute.

We are almost ready for the new arrival. The twins are back together in one room, Rebecca now has Rose’s room and baby girl will have Kaitlyn’s old room. All the rooms have been painted and Heidie and friends have nicely decorated the baby room.

Kim came for a visit this week as well, and was the first person to sleep in the new baby room.

We are still thinking about names. The baby’s official due date is July 12–Heidie was just in to see the doctor this week and everything is on-track and everyone is healthy.

Blessings,

-Lockley

Baby Feet @ 7 months

Baby Feet @ 7 months

New Addition in AZ

Posted by on Monday, 13 December, 2010

The AZ Gentes family is happy to announce that we are expecting an addition to the family. As experienced parents, with 3 daughters, we were surprised and excited to find out that Heidie is pregnant.

We went to an early ultra-sound (at 9 weeks), to find out if we will be having multiples or a single baby. Already having the twins gives us a higher possibility for more multiples. Results show that there was a single heart beat….we were happy with those results 😉  A picture of the ultra sound is on the right.

Everyone that has given an opinion on the sex of the baby, has sided with the Boy. Many people saying that’s their *gut* feeling.  We are planning on finding out, which can happen at around 18-20 weeks into the pregnancy. Feel free to let me know if you have some *revelation* as to a girl or boy.

We were talking around the dinner table the other night, and I had a question that remained unanswered: What is the percentages of having a boy/girl if the first 3 children have been girls (I mean based on history of cases similar to ours) ?  Anyone know the answer? If so, let me know.

Blessings to everyone this Christmas….I hope to send an update on this topic once we have gotten word of whether we will have a boy or a girl.

-Lockley (from the AZ Gentes family)